We sought to examine what condition caused pain in each case; 77.1% (165/214) reporting being formally diagnosed with a chronic disease as the root of their pain. Participation in online patient support groups endorses patients' empowerment. https://doi.org/10.1177/1059712318772778. Table 6 provides the cumulative percentage of reports (somewhat to very much) for all three domains of psychological health for each platform used. An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication. 2018; Shane-Simpson et al. Chronic pain was chosen as a suitable subset of chronic disease due to the global burden it poses for health and society and because pain is often a major symptom of various chronic diseases and/or can co-exist as a chronic disease in its own right [13]. While many statistically significant findings were observed supporting this aim, we conclude that our results to date do not prove the two hypotheses we formed. 3 Bucher, Taina, and Anne Helmond. It is shown that social media users actively appropriate online platforms and change privacy settings in order to keep different social spheres and social groups apart, and a theoretical refinement of affordances is suggested, and the concept of affordance-in-practice is proposed. Conceptual models for health education research and practice. Google Scholar. Supplementary to this data were free-text responses, which are the subject of a separate paper [22]. The impact of health oriented social media applications on health outcomes. Regardless, missing data created a problem for data analysis and was the primary reason that results reporting centered on descriptive statistics rather than hypothesis testing. Ability to perform day-to-day activities was most reported. The article examines the semiotic features of the virtual narrative in the projects of RIA.Lab platform of the leading Russian news agency Russia Today. The example of the postbox and the examples of social interactions point to two different senses in which the term "social affordance" is normally used. It is also possible that not all therapeutic affordances of social media are derived from every platform, thus creating variability in response counts. Ingold, T. (2000). 5 - social constructivist teaching: Affordances and . Data analysis methods included descriptive statistical analysis, frequency counts, as well as cross-tabulation to examine any statistical associations between variables (either using Pearsons chi-square or the gamma statistic for ordinal-by-ordinal or ordinal-by-binary computations). Social Affordance. With health status controlled for, the results show that users tend to be well-educated females, in relationships, aged 30-60 years. A number of social media scholars have emphasized the crucial role that representations of authenticity play in social media entertainment. We also acknowledge that individual interpretation of therapeutic affordances may differ. https://doi.org/10.1007/978-3-319-55065-7_1870, Encyclopedia of Animal Cognition and Behavior, Shipping restrictions may apply, check to see if you are impacted, https://doi.org/10.1016/j.concog.2020.102897, https://doi.org/10.1007/s11229-018-1716-9, https://doi.org/10.1207/S15326969ECO1502_5, https://doi.org/10.1080/10407410701331934, https://doi.org/10.1016/B978-0-12-385527-5.00003-6, https://doi.org/10.1080/10407413.2019.1695211, Reference Module Humanities and Social Sciences, Tax calculation will be finalised during checkout. Adults (18 or older), with chronic pain (3 months or greater) who used social media as part of self-management were invited to participate via social media channels. van Uden-Kraan CF, Drossaert CH, Taal E, Seydel ER, van de Laar MA. After some 20 years, it has grown significantly. London: Routledge. The emotionally cathartic effect of sharing experiences online has been widely reported [11,49,50]. However, its broader clinical application, generalizability, and scalability are yet to be confirmed. Amtmann D, Cook KF, Jensen MP, Chen WH, Choi S, Revicki D, Cella D, Rothrock N, Keefe F, Callahan L, Lai JS. Despite being inherently social in nature, their architecture goes back to the early days of the Internet [40]. assume relevance at different levelsfor example, affordances asso-Similarly, openness may play a critical role in providing access to ciated with social media may hold implications for different types of different types of actors and resources needed to resolve complex so- actors (individuals, organizations, and communities) in different in . For the purposes of our study, therapeutic affordances becomes useful to conceptualize the properties of different social media affording therapeutic effects. This paper presents findings from analysis of quantitative data collected from a global online survey of PWCP, investigating PROs from social media use to manage chronic pain. This was achieved using skip logic or adaptive questioning, as well as piloting the survey before opening the survey. CrossRef Merolli M, Martin-Sanchez F, Gray K. Social Media and Online Survey: Tools for Knowledge Management in Health Research. In order to attempt to mitigate this and potential attrition, not all questions were marked as mandatory. Results are again reported as cumulative percentages of participant reports. A total of 231 PWCP took part in a global online survey investigating PROs from social media use. Patient-reported outcomes (PROs) from social media use in chronic disease management continue to emerge. In microblog use, positively impacted components of social health correlate with positive reports for asynchrony and geographic freedom. Weichold, M., & Thonhauser, G. (2020). Kiverstein, J. D., & Rietveld, E. (2018). We therefore use the term therapeutic affordances throughout this paper to describe the factors that may underlie social medias impact on PROs. CrossRef While many published articles suggest the potential for social media is positive, there is a lack of robust examination into mediating mechanisms that might help explain social medias therapeutic value. Collective affordances. Adaptation was investigated relative to (1) use changing dependent on stage of illness, which ranged from 52% (23/44 wiki users and 13/25 microblog users) to 71% (121/170 SNS users); and (2) frequency of use during flare-ups of pain or (3) frequency of use during stable pain. Paralinguistic digital affordances (PDAs) [2] are simple cues that one can give in response to social media content with one click. Conversely, synchronous interaction was supported by markedly fewer participants, ranging from 0% (VSS, blog, and wikis users) to 8% (14/169 SNS users). Lea, m. , o kane, p. , & scardamalia, 1979 62. . Representativeness is also relevant to this research. https://doi.org/10.1016/B978-0-12-385527-5.00003-6. Most took medication (85.9%, 177/206) and saw a doctor (81.1%, 167/206) as primary management, with physical therapy/physiotherapy as the third most common method (59.5%, 102/206). It may be equally useful to show associations between variables in other social media research contexts. A placebo is an example of a false affordance. This can be seen in Multimedia Appendix 3. However, the effect is strongest for the component learning from others experiences. Other responses supplied as free text included, but were not limited to, acupuncture and eastern medicines, other physical therapies (eg, remedial massage, chiropractic), exercise, surgery, injections/nerve blocks, and other self-management strategies (eg, cognitive behavioral therapy). With all of that to say, it seems like the biggest impact that technological advances is having on social media is aiding in visualizing our social networking experience. Lorig KR, Ritter PL, Laurent DD, Plant K. The internet-based arthritis self-management program: a one-year randomized trial for patients with arthritis or fibromyalgia. This appears to be regardless of whether pain was reported as stable or flared. In: Vonk, J., Shackelford, T.K. However, the same study also iterates that lurkers also gained support through online activity (particularly through increased insight). In-depth interviews could help . Further research exploring the nature and impact of those therapeutic affordances is warranted. Previous studies investigating frequency of Internet use by people with chronic disease hypothesized that health-related Internet use would show a pattern of relatively high frequency; however, their findings showed a much more occasional usage pattern [32]. This study presents findings from a global online survey of people with chronic pain (PWCP) to better understand how they use social media as part of self-management. This finding was replicated for all platforms and all health outcomes and thus is worthy of further attention. The paper shows that the perceived affordances may have multifacet characteristics and the interaction design of social media should reflect the multidimensional perceived affordance. The three individual components of identity asked participants to rate the following preferences: (1) preference to control the amounts and sorts of things others knew about them, (2) preference to remain anonymous, and (3) preference to know details about the people they were interacting with. This analysis technique is normally reserved for mapping gene expression in more complicated genomics experiments. PubMedGoogle Scholar. However, there is agreement that social media are pervasive in . An analysis of social media use by people with chronic pain. Flexibility was observed via preferences for asynchronous communication (interacting at a time that suits). Each identified organization or group moderator was emailed for assistance. Also, we have introduced a novel way to extract and analyze a large amount of complex data. 2014. pp. Regarding the therapeutic affordance of identity, participants were most concerned with preference to control the amounts and sorts of things they share with others. . Social network sites as a mode to collect health data: a systematic review. Social media affordances and governance in the workplace: an examination of organizational policies. This research highlights several key considerations. Mark Merolli, B Physio (Hons), Kathleen Gray, PhD, [], and Guillermo Lopez-Campos, PhD. Our study draws from the behavioral psychology theory of affordances to explain this. Sociology. However, a greater number of statistically significant PROs were seen for increased use when pain has flared up. Cindi Drennan - Projection mapping. 1Health and Biomedical Informatics Centre, The University of Melbourne, Melbourne, Australia. For example, the Nokia Lumia 1020 that boasts a 41 megapixel camera. Media richness or media naturalness. One of the major issues discussed was survey fatigue, and 15-20 minutes was agreed on as an appropriate length. Findings regarding optimal frequency of social media use to positively impact PROs were inconclusive. The first was supported by the greatest number, with a cumulative percentage of responses (agree to strongly agree) ranging from 83% (20/24 microblog users) to 93% (39/42 VSS users) across all platforms. Popular examples of Web 2.0 include blogs, forums, and wikis. Please Ask. You can get your custom paper by one of our expert writers. Psychological health consistently demonstrated the greatest number of positive reports from social media use, with emotional burden most reported, followed by depression and anxiety. The Like, while ubiquitous, can be inappropriate for certain situations due to its literal meaning. A good example clarifies social affordance [3] as follows: " A wooden bench is supposed to have a sit affordance. Examples were Do you suffer from chronic pain (pain over 3 months duration)? (with 3 months selected in line with definitions of chronic pain provided in [27,28]), Have you been undergoing treatment for your chronic pain during the last year?, and Have you been formally diagnosed with a chronic disease that has caused your pain?. Table 8 contrasts the differences in frequency of social media use depending on pain status based on number of cumulated responses. Consciousness and Cognition, 79, 111. As reported earlier in the results, social media use follows an occasional use pattern rather than often, regardless of disease status. The same line of questioning was used for each platform, with participants requested to answer questions only for the platforms they used as part of self-management. To compare the interactions between all three variables (platform, outcome, and therapeutic affordance components), we ran a cluster analysis using Cluster 3.0 [30] with data coming from the statistical analyses of combined platform-outcome variables and the therapeutic affordance components. Percentage of participants describing usage frequency of social media platforms (fairly often-very often) according to pain status. For example, Do you feel that your use of social network sites has in any way helped your?. Examples of Social Media (Ranked by Monthly Users) 1. Number of people with chronic pain using each social media platform. The Affordances of Social Media Platforms. In. Travis Noakes Follow Post-doctoral Research Fellow Advertisement Slideshows for you Viewers also liked (12) Affordances cijat Affordance and value Paull Robathan Represented by the color gray, further statistical analysis was not conducted for many relationships. Quantitative analysis was performed on the data using descriptive statistics, cross-tabulation, and cluster analysis. More specifically, participants were asked to indicate level of agreement regarding sharing ones own experiences, which ranged from 18% (7/40 wiki users) to 82% (139/170 SNS users) and learning from the experiences of others, which was considerably higher with 56% (24/43 wiki users) to 96% (69/75 microblog users). While the trend was similar for all platforms, only DF use was shown to be statistically significant to positive reports for cognitive health. Sage Publications. 13 used the affordance theory to show that self-promotion, entertainment, exploration, and religiosity predict fake news sharing. While results did not confirm this hypothesis, they did corroborate findings in academic literature. Both participation in social activities and family life were also well reported. Encyclopedia of Animal Cognition and Behavior pp 64976500Cite as, Affordance; Direct perception; Ecological psychology; Environment-organism systems; Information-based approach; Perception-action theory; Social cognition; Social interaction. We first describe five differentbut relatedways in which affordance has been conceptualized and subsequently address how it has been employed to analyse social media in particular. Significance was observed for both flares and stable periods of pain. (2003). Another social media review uncovered the effects of social media affordances on organizations and individuals and systematically reviewed the way the theory was being employed [29]. Development of a PROMIS item bank to measure pain interference. The social constitution of perceiver-environment reciprocity. However, reported increased use during flares of pain has a greater number of statistically significant relationships (this includes cognitive health from wiki use). This is true for SNS, blog, DF, and microblog use. Semantic Scholar is a free, AI-powered research tool for scientific literature, based at the Allen Institute for AI. Participants reported various offline methods (in the last 12 months) for pain management. Commonly known examples include a chair affords sitting, a keyboard affords typing, and a button affords pushing. Chou WY, Hunt Y, Folkers A, Augustson E. Cancer survivorship in the age of YouTube and social media: a narrative analysis. Broad reach and targeted recruitment using Facebook for an online survey of young adult substance use. We note that the statistically significant PROs mirror those reported earlier: cognitive, social, and psychological health (with ADLs also seen in SNS and DF use). Ability to concentrate had fewer positive responses and those for ability to sleep were minimal. Various conditions were reported. Questions about therapeutic affordances were phrased to elicit perceptions about different underlying uses. There has been interest on the affordances of social media in the IS literature. The asynchrony provided by most social media has been well documented previously [33,46]. J Med Internet Res. In the postbox case the letter-mailing affordance is social because it depends on an ongoing social-cultural practice to be available. He defined it as the relationship between an environment and an actor. Affordances are often described as properties of artifacts that can be recognized by users and contribute to their function or items that present an action possibility. PWCP were positive about moderated/facilitated social media use, particularly for the involvement of health professionals in online interactions. Data from social media platforms with less than 20 responses were excluded from any further analysis, due to low cell counts leading to poor statistics. Content maybe subject tocopyright Report. The ePub format is best viewed in the iBooks reader. Good 57 excellent 4 extreme 9 previous 6 clear 17 remarkable 7 simple 14 numerous 4 striking 8 single 5 6.33. Google Scholar. This is often used interchangeably with disease-specific knowledge in the literature, with earlier reports from SNS use in chronic pain management indicating that disease-specific knowledge can improve and can lead to better self-management [42]. A position of constitutive entanglement does not privilege either users or social media artifacts, nor does it provide a . In outlining its specific. Setoyama Y, Yamazaki Y, Namayama K. Benefits of peer support in online Japanese breast cancer communities: differences between lurkers and posters. This paper examines how organizations perceive affordances of social media and how they react to their employees' use of social media . van Uden-Kraan CF, Drossaert CH, Taal E, Shaw BR, Seydel ER, van de Laar MA. The color scheme is described in the legend. Our study has added to previous research, with findings highlighting positive impact on psychological, social, and cognitive health from social media use, and showing that much of the potential of social media for impacting such health outcomes lies in their ability to foster the narrative experience. Using the Internet for surveys and health research. You may switch to Article in classic view. Our results suggest that enjoyment of life and relationships with other people are the most notable social well-being outcomes reported. Such a perspective requires taking into account how affordances relate not only to end-users and their activities but also to third-parties such as developers who extend the affordances offered by the platform, and advertisers who monetize platform activities. The narrative effect examined social medias ability to foster shared experiences of illness. Boczkowski et al. Door handles are a great example of affordances we encounter every day. The total dataset represented 218 completed surveys. Duff C. Exploring the role of 'enabling places' in promoting recovery from mental illness: a qualitative test of a relational model. This supports similar views that professional or facilitated online interactions diminish the risk of patients ending up with poor or misleading information [47]. Answers biased towards no help or not at all may actually have been indicative of deterioration or a negative impact. Most can agree that posting pictures on social media with alcohol is a red flag and consider refraining from such. Our quantitative data collection methods did not make specific provision for the reporting of perceived adverse effects. Table 2 provides the cumulative percentage of participants reporting PI from somewhat to very much in the last 7 days. Reason not working (due to ill health in 76% of cases) was most strongly correlated to the PROs. Multimedia Appendix 2 provides a detailed account of the activities participants perform when using social media as part of chronic pain self-management. Kaplan AM, Haenlein M. Users of the world, unite! In November 2015, social media platform Twitter changed the symbol of one of its core. Results are ranked from most used to least in the last 12 months (Table 3; Figure 1). In case of a legitimate complaint, the Library will make the material inaccessible and/or remove it from the website. Shah A, Jacobs DO, Martins H, Harker M, Menezes A, McCready M, Pietrobon R. DADOS-Survey: an open-source application for CHERRIES-compliant Web surveys. Adaptive Behavior, 26(4), 147163. This provides preliminary evidence that social media use may offer greatest benefits to those experiencing exacerbations of pain. The first domain asked participants about general demographic information (eg, gender, age, education, employment). This chronic pain-focused research further validates previous research into health outcomes from social media use in chronic disease management [11]. The goal is for this to help tailor future recommendations for use of social media to meet individuals health needs and improve clinical practice of social media use. Yinan Sun, D. Suthers. Professor in the School of Literature, Media and Communication at the Georgia Institute of Technology, Janet Murray is well known for her contributions to human computer, digital media theory and her book Inventing the Medium.In her book she says affordances are a concept used in the field of human computer interaction to describe the functional properties of objects or . ), Psychology of learning and motivation: Advances in research and theory (Vol. Abstract:This chapter reflects on the concept of affordance as a key term for understanding and analysing social media interfaces and the relations between technology and its users. The perceived affordances can support or facilitate the design of basic elements of social media, such as content and form, to enhance both usability (humancomputer interaction) and sociability (humanhuman interaction). Published reports of the power of the narrative effect explain that emotional health management can occur through actively sharing and/or learning from others experiences [49,50]. The extant conceptualization of affordances (for example, Treem and Leonardi 2012; Zheng and Yu 2014) that assumed proximal and . It follows approaches to developing and evaluating conceptual models in health [14] and is compliant with the Checklist for Reporting Results of Internet E-Surveys (CHERRIES) [15,16]. https://doi.org/10.1007/978-3-319-55065-7_1870, DOI: https://doi.org/10.1007/978-3-319-55065-7_1870, eBook Packages: Behavioral Science and PsychologyReference Module Humanities and Social Sciences. Affordance, adopted from ecological psychology, is now widely used in technology studies, yet the term lacks a clear definition. Here, the approach involves adopting platform-afforded research personasuser, developer, advertiser, and so onto consider how platform providers address their varying groups on different sides via distinct interfaces (cf. Eysenbach G. Improving the quality of Web surveys: the Checklist for Reporting Results of Internet E-Surveys (CHERRIES). The data were analyzed using statistical software package SPSS. Frequency was measured on a scale ranging from at least daily to less than monthly. Missing data are also the reason that Figure 3 is an analysis of only the three most reported platforms and the two most reported PROs. Therapeutic affordances of social media and patient-reported outcomes. Percentage (agree-strongly agree) of participants indicating therapeutic value of sharing experiences (ones own vs others). Chung DS, Kim S. Blogging activity among cancer patients and their companions: Uses, gratifications, and predictors of outcomes. Reports from use of all other platforms were equally positive: microblogs (70%, 14/20), SNS (68%, 110/161), blogs (67%, 45/67), and DF (65%, 43/66). However, users do not often completely transform the whole purpose of a platform in this way. examples of the identified high-level affordances include persistence, replicability, scalability and searchability of social networking sites (boyd, 2011); visibility, editability,. Participants indicated a clear propensity for SNS. The final dataset thus represented 218 completed surveys. A survey of patients' use of the internet for chronic pain-related information. Between 44% (19/43 wiki users) and 92% (71/77 blog users) perceived that social media are effective platforms for recording stories of chronic pain. Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia. For example, statistical significance is high in DF: preferences for presence of a facilitator correlate with positive reports for cognitive health. The second preference showed considerably more variability ranging from 29% (50/170 SNS users) to 83% (34/41 wiki users). In outlining its specific intellectual trajectory from psychology, to . One might look at a book and think, "I could use that for reading." It could also be used to smash a spider that looks like trouble. Now, I don't know what on earth you would use a 41mp camera for, but they exist. In J. Burgess, A. Marwick, & T. Poell (Eds. An affordance is the relationship between an object and the actions a person can take with that object. Finally, the third preference was supported by a lesser number, 15% (6/41 wiki users) to 37% (63/172 SNS users). Positive impact on emotional burden was the most reported health outcome in our survey (most evident with SNS use). Facebook (2.91 Billion Monthly Users) Facebook is the most popular social media platform in the world. Only 24.7% (57/231) of participants reported where and how they were made aware of the survey, with 6.5% (15/231) indicating through Chronic Pain Australia. Teachers and researchers likely have yet to understand all the affordances that social media may offer as they continue to be repurposed and used in new contexts. This was pertinent for participants who reported using several platforms as part of their chronic pain self-management. Participants reported social media (excluding wikis) were effective platforms to record stories of chronic pain. The case of Free Lunch for Children (FL4C), a charitable programme in China based on the microblogging platform, Weibo, is examined, drawing upon the collective action model to better understand the sociomaterial practices and social processes involving social media. The number of PWCP with fibromyalgia was more than double most other reported conditions, with arthritis second. Participants were asked to respond to questions about only those platforms related to their own pain self-management. 2022 Springer Nature Switzerland AG. It may prove useful to guide a more sophisticated approach to social media, tailored to the characteristics and preferences of different groups of patients, leading to better overall health outcomes in the management of chronic disease. For instance, a rigid flat surface affords support and locomotion to terrestrial animals. affordances); 2) learning by doing, and 3) peer collaborations. He owns and operates, You are a member of the jury in Ms. Crane's trial. There is a trend away from a traditional computer science-inspired agenda towards a focus on, RUDN Journal of Studies in Literature and Journalism. This survey forms part of a larger research project and framework being refined to generate evidence about health outcomes from social media use in chronic disease management [12]. Distal engagement: Intentions in perception. Taina Bucher, Anne Helmond. For this reason, response numbers varied for each platform. Other scholars, while deepening this initial study, have theorized that social media provide the following four affordances that represent different ways to engage in knowledge-sharing conversations in the workplace: metavoicing, triggered attending, network-informed associating, and generative role-taking ( Majchrzak, Faraj, Kane, & Azad, 2013 ). This has been the subject of various published papers [25,52]. Fetters L, Ellis T. A perception-action framework for physical therapy for persons with neurologic dysfunction: use of therapeutic affordance and unitless ratio. https://doi.org/10.1007/s11229-018-1716-9. The major sections of the survey were influenced by previous studies in this domain and validated survey models in chronic disease and chronic pain [17-20]. Welcome! This suggests that PWCP people may not be using social media to their full potential. Positive impact on physical health was predominantly reported as not at all. If the moderator was willing to share the survey with their members, a link to the survey was placed on the websites of the groups, shared on social media, and included in newsletters where appropriate. A hiker who has walked for hours and passes the wooden bench on a walk along small country roads might perceive the sit affordance of the wooden bench as a function of the degree of fatigue. The central focus of IINI is to arrest adults involved in Internet pornography rings. Understanding affordance will allow you to better understand product and interfaces design, in turn, social media communities, mobile devices, theme parks, and even augmented and virtual reality. Ability to stand (>30mins) was the most reported physical limitation by participants. Welcome to the 2022 ACM Interactive Surfaces and Spaces Conference (ACM ISS 2022). Then, it examines the significance and limitations of the original meaning of affordances of the environment that is provided by . Our understanding of social media use to impact health outcomes is not yet mature enough to recommend such definitive use in clinical care. Survey fatigue was another central issue relevant to study design, given that our survey asked questions about a wide variety of social media. Fatigue and concentration may have become factors. It was a self-administered questionnaire of 240 questions, asking participants to provide quantitative and qualitative data about a variety of areas: demographics, health/pain status, social media use, therapeutic affordances, and PROs from use (Multimedia Appendix 1). Using the practice of taking selfies at the Memorial to the Murdered, By clicking accept or continuing to use the site, you agree to the terms outlined in our. Components of the adaptation affordance (frequency of use when flared or stable) were the exception, measured as not at all to very often. We are experimenting with display styles that make it easier to read articles in PMC. Structure examined social medias ability to guide participants to useful information and support. This affordance is utilised by over half of all internet users, although research show that most users are unaware of this need (Oeldorf-Hirsch & Sundar 2016, pp. Demographic characteristics and patient-reported outcomes. The ePub format uses eBook readers, which have several "ease of reading" features Despite these benefits, there has also been a rise in the cons due to social media such as fake content, hate speech, and passing of information that is extremist, which has adverse effects on society as a whole. It is stand-on-able and walk-on-able (Gibson 2015). Our aim is to improve understanding of the various health outcomes reported by PWCP by paying close attention to therapeutic affordances of social media.

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